Announcing the Launch of the Austrialian NPC Foundation It is with great pleasure that we announce the official set up of the Australian NPC Disease Foundation incorporated in Australia by Mandy Jacobs, mum to Matthew 22 and Tim 19 - both with NPC..
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Would you like to support the work of the NPDG (UK)? Raising funds for the NPDG (UK) has never been so easy! You can now create your own personalised fundraising page at www.justgiving.com , shop on line and raise funds at the same time with www.easyfundraising.org.uk or even raise funds when you surf the internet using www.easysearch.org.uk |
Jamie Sky Dives for the NPDG (UK)
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Gemma’s hair-raising idea to help her Brother Ben……
Gemma Salisbury’s little brother Ben, age 8, has Niemann-Pick Type C. Gemma, age 13, knows all about the disease and wanted to raise awareness of Ben’s condition, as well as to raise funds that will help to support other families in their situation and also enable further research into the disease.
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Jeremy and Helen Run the New Forest Marathon
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Welcome to The Niemann-Pick Disease Group (UK)
Making a positive difference to the lives of those affected by Niemann-Pick Diseases
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Let's Talk About Research NPC Research Meeting Held on 1st December 2009 to view the presentations click here |
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On Wednesday September 2nd Jamie Perkins completed a tandem sky dive in aid of the NPDG (UK) 
On 10th October 2009 Paul Bayliss and three friends took part in 