Welcome to the Niemann-Pick Disease Group (UK)

About us

Topics in this section:

Child and Vulnerable Adult Protection Policy 'For the purpose of this policy, children are any person under the age of eighteen years, or those who are considered vulnerable. A Vulnerable Adult is any person aged 18 or over who may be unable to take care of themselves or protect themselves from harm or from being exploited. This may be because they have a disability, a sensory impairment, are frail or have some form of illness...'

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NPDG Equal Opportunities Policy 'The Niemann-Pick Disease Group (UK) is committed to the policy of equal treatment of all employees, volunteers, applicants, service users, suppliers and all associated with the activities of the organisation.
All employees and volunteers are required to comply with the organisation’s equal opportunities policy, as well as the Codes of Practice issued by the Equal Opportunities Commission, the Commission for Racial Equality, under the Disability Discrimination Act and, in Northern Ireland, the Fair Employment Commission...'

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Confidentiality Policy and Procedure 'The aim of this policy is to provide a set of guidelines for staff, trustees and volunteers.
Confidentiality is a fundamental principle of the Niemann-Pick Disease Group (UK), hereafter known as NPDG (UK). This guidance is designed to help staff, trustees and volunteers apply the principle in a range of different circumstances. It cannot cover every possible situation and staff should contact the Chair of the Board of Trustees with any queries...'

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Strategic Delivery Plan 2008

What do we want to achieve?
How will we achieve our outcomes?
What is the time frame for achieving our outcomes?
How will we know we have been successful?

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In Memory of Roger Franklin

Roger Franklin, Trustee of the NPDG (UK), sadly passed away on September 2nd 2009. Here, Bill Owen, his long time friend and fellow NPDG (UK) Trustee pays tribute to him.