Gemma Salisbury’s little brother Ben, age 8, has Niemann-Pick Type C. Gemma, age 13, knows all about the disease and wanted to raise awareness of Ben’s condition, as well as to raise funds that will help to support other families in their situation and also enable further research into the disease.

 

 

 

 

Gemma set up her own justgiving page, announcing to the world:

“I am 13 years old, I love my hair... I am SHAVING it off. Because although it will be hard and people will judge my new look. My hair will return. Sadly my brother won’t regain anything this illness has taken and continues to take.”

Gemma’s brave decision to make this statement has raised an amazing £547.50. Well done Gemma!