Toddlers, Scouts and South Africans join in Balloon Race! |
Coffee Morning |
Niemann-Pick-Nic Rebecca Walters held a Niemann-Pick-Nic in her garden, she writes; |
Scafell Pike Challenge |
Coffee Morning
By Rose and Ron Thompson
We are a small community, consisting of three blocks of flats. On hearing about Lucy Mathieson age 3 who suffers from Niemann-Pick Disease Type C, we felt we could do something to raise funds.As myself and Sylvia run a small community room, we thought this the ideal venue. We printed out leaflets and put posters up in each block. All the people who attend the community room brought all kinds of things along and we were able to have a giant tombola, raffle and bric-a-brac stall. One lady gave a beautiful doll and we had a ‘Guess Her Name’ competition.
Sylvia baked a mountain of pies and cakes. We also had tea, coffee and home made scones (I made them). We had a great morning. Even before the event people were giving money – they wanted to help in any way possible.
At the end of the morning, I could not believe we had raised the fantastic amount of £522.17 – we are looking forward to our next fundraising day. Great big thanks to everyone.


During Niemann-Pick Awareness Week 2006 Liz Jacklin organised 3 balloon races. She writes:
By Rose and Ron Thompson
Roger Franklin set himself a challenge for Awareness Week, to climb the infamous Scafell Pike in the Lake District. He successfully completed the challenge at 11.13 a.m. on Tuesday 8th August. He writes:.....