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Niemann-Pick Annual Family Conference

Coffee Morning

By Rose and Ron Thompson

We are a small community, consisting of three blocks of flats. On hearing about Lucy Mathieson age 3 who suffers from Niemann-Pick Disease Type C, we felt we could do something to raise funds.

As myself and Sylvia run a small community room, we thought this the ideal venue. We printed out leaflets and put posters up in each block. All the people who attend the community room brought all kinds of things along and we were able to have a giant tombola, raffle and bric-a-brac stall. One lady gave a beautiful doll and we had a ‘Guess Her Name’ competition.

Sylvia baked a mountain of pies and cakes. We also had tea, coffee and home made scones (I made them). We had a great morning. Even before the event people were giving money – they wanted to help in any way possible.

At the end of the morning, I could not believe we had raised the fantastic amount of £522.17 – we are looking forward to our next fundraising day. Great big thanks to everyone.

Toddlers, Scouts and South Africans join in Balloon Race!Ian BirchnallDuring Niemann-Pick Awareness Week 2006 Liz Jacklin organised 3 balloon races. She writes:
“The first started out as a small family gathering, my dad’s wife had family over from South Africa and she was hosting a family get together for them. I saw this as a perfect opportunity to have a party with a difference and we sold balloons to all the party guests....Read more

Coffee Morning Ian BirchnallBy Rose and Ron Thompson
We are a small community, consisting of three blocks of flats. On hearing about Lucy Mathieson age 3 who suffers from Niemann-Pick Disease Type C, we felt we could do something to raise funds....Read more

Niemann-Pick-Nic Rebecca Walters held a Niemann-Pick-Nic in her garden, she writes;
“With the weather being so nice we decided to hold a Niemann-Pick-Nic in our back garden. Then what should happen on the morning of Saturday 22nd July – the heavens opened!!! We still went ahead with it though and a fab day was had by all....Read more

Scafell Pike ChallengeRoger Franklin set himself a challenge for Awareness Week, to climb the infamous Scafell Pike in the Lake District.  He successfully completed the challenge at 11.13 a.m. on Tuesday 8th August.  He writes:........Read more

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