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Niemann-Pick-Nic

Rebecca Walters held a Niemann-Pick-Nic in her garden, she writes;

“With the weather being so nice we decided to hold a Niemann-Pick-Nic in our back garden. Then what should happen on the morning of Saturday 22nd July – the heavens opened!!! We still went ahead with it though and a fab day was had by all. My dad put three gazebos up in the garden to shield the guests from the wonderful British weather. We invited mostly friends and family and charged them a £5 entrance fee, this included food and drink which had all been donated.

There was a fancy dress competition, a raffle and tombola. We were given 30 2006 World Cup memorabilia pint glasses and asked people to make a donation for them. We also had a ‘Guess the Weight of the Cake’ competition and the balloon race.

Unfortunately, the balloon race was a bit disastrous – once the luggage labels were attached the balloons didn’t fly!!! But after raising £432 in total – what the heck!!! Everyone was very understanding about the whole thing – thank Goodness!!

Toddlers, Scouts and South Africans join in Balloon Race!Ian BirchnallDuring Niemann-Pick Awareness Week 2006 Liz Jacklin organised 3 balloon races. She writes:
“The first started out as a small family gathering, my dad’s wife had family over from South Africa and she was hosting a family get together for them. I saw this as a perfect opportunity to have a party with a difference and we sold balloons to all the party guests....Read more

Coffee Morning Ian BirchnallBy Rose and Ron Thompson
We are a small community, consisting of three blocks of flats. On hearing about Lucy Mathieson age 3 who suffers from Niemann-Pick Disease Type C, we felt we could do something to raise funds....Read more

Niemann-Pick-Nic Rebecca Walters held a Niemann-Pick-Nic in her garden, she writes;
“With the weather being so nice we decided to hold a Niemann-Pick-Nic in our back garden. Then what should happen on the morning of Saturday 22nd July – the heavens opened!!! We still went ahead with it though and a fab day was had by all....Read more

Scafell Pike ChallengeRoger Franklin set himself a challenge for Awareness Week, to climb the infamous Scafell Pike in the Lake District.  He successfully completed the challenge at 11.13 a.m. on Tuesday 8th August.  He writes:........Read more

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