The Royal Free Hospital, London
The National Specialist Commissioning Advisory Group has now designated this unit as one of the six specialist units in the UK for all lysosomal storage disorders. The Centre is for the management of adult patients but works closely with colleagues at Addenbrooke's Hospital (Cambridge) and Great Ormond Street (London) for the assessment and treatment of affected children.
The Unit offers diagnostic screening, assessment, treatment and monitoring. Patients can come from all over the UK. Almost all of those requiring treatment receive this in their home or at their local hospital. Patients receiving treatment attend every six months. Others attend yearly. The Unit benefits from being part of a large single-site teaching hospital with most clinical tests and an array of complementary specialities all under one roof. The Unit has an ‘open door' policy. The Royal Free is in Hampstead, North London. This is outside of the central zone requiring the congestion charge. Help is also available for expenses for those who have to travel from other parts of the UK.
The Unit is a major centre for research into lysosomal storage disorders including clinical trials in treatment modalities, the search for bio-markers (to measure treatment outcomes) and the aetiology of the conditions.
Contacts:
Consultant Haematologist - Dr Atul Mehta MA cantab MD FRCP FRCPath
Senior Lecturer in Haematology - Dr Derralynn Hughes MA DPhil FRCPath
Clinical Nurse Specialist Lysosomal Storage Disorders - Linda Richfield RGN RM
Clinical Nurse Specialist Lysosomal Storage Disorders - Capt. Alan Milligan RGJ RGN,
Clinical Nurse Specialist Lysosomal Storage Disorders - Anne Jennings RGN,
Clinical Nurse Speacialist Lysosomal Storage Disorders - Lyn Steel RGN,
Secretary to Dr Mehta - June Elliott
Senior Biomedical Scientist - Robert Baker BSc MSc AIBMS,
Research Postgraduate - Adele Holmes
Unit Administrator -Patricia Pilgrim
Research Technician - Matthew Reed
For more information visit their website
The Lysosomal Storage Disorders Unit
The Royal Free Hospital
Pond St.
London NW3 2QG
Tel: 0207 472 6409
Fax: 0207 317 7689