ACT is the only organisation working across the UK to achieve a better quality of life and care for every life-limited or life-threatened child or young person and their family.

Admiral Nurses offer skilled assessment of the needs of family carers and people with dementia as well as providing informatin and practical advice for family carers on different aspects of caring for a relative/friend with dementia.

Carers Direct offering information, advice and support for carers

Carers UK was formed from the merger of two carer organisations with roots going back to the 1960's. Carers UK was set up by carers themselves and is a member led organisation.

CEREBRA is a charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting children and their carers to improve their lives and help them be comfortable with their world, giving them the chances for experiences and enjoyment that all children should have.  

Children's Hospices UK is the national charity that gives voice and support to all children's hospice services. Their vision is for every child and young person who is not expected to reach adulthood and their family to have access to the highest standards of children's hospice care and support close to home. 

Children Living with Inherited Metabolic Diseases (CLIMB) is committed to fighting metabolic diseases through research, awareness and support.  They are the UK's only dedicated organisation to provide information and support on all metabolic diseases to children, adults, families, carers and professionals. 

Contact a Family are the only UK-wide charity providing advice, information and support to the parents of all disabled children. 

Eurodis Rare Diseases Europe is a non-governmental patient-driven alliance of rare disease patient organisations representing more than 423 rare disease patient organisations in over 43 countries.   Eurordis also plays an important role in the orphan drug development process through its participation in the Committee for Orphan Medicinal Products (COMP) at the EMEA (European Medicines Agency).

Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child.  EDCM is a consortium campaign run by four of the leading organisations working with disabled children and their families: Contact a Family, the Council for Disabled Children, Mencap and the Special Educational Consortium. Between them, the campaign partners represent over 770,000 disabled children and young people in the UK.

Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.  Their approach is to focus on finding solutions to difficulties which arise as a consequence of the disability, rather than on the disability itself.

The Genetic Alliance UK is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.

Help the Hospices is the leading charity supporting hospice care throughout the UK.

Livability support disabled people to live in their own homes and live as independently as they want.

Mencap is the voice of learning disability - every day they support thousands of parents, carers and people with a learning disability to lead a full and valued life.

Orphanet is a European website providing information about orphan drugs and rare diseases for both professionals and patients.

Special Kids in the UK is a charity for families who have a child of any age with special needs.

The Project - The Children's Rare Disease Network is a website/forum for children and families affected by rare diseases to share their stories and support one another

Whizz-Kids is a charity that is all about giving disabled children the chance to lead a more independent life by ensuring they get the right mobility equipment, advice and training at the right time.