ࡱ> uwtY "AbjbjWW =="=]     ,8  + $~    ^   T jNDtex  D0NIEMANN-PICK DISEASE GROUP (UK) REPORT AND FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2005 98 YARNINGDALE ROAD, BIRMINGHAM, B14 6NB NIEMANN-PICK DISEASE GROUP (UK) 1. Trustees: Jim Green (Chairman) Janice Brooks Tony Jellings (resigned January 2005) Bill Owen Richard Rogerson Zoe Mead-Wynne Kristina White Richard Brooks Tom Brooks Yasmin Ahmed Secretary: Zoe Mead-Wynne Treasurer: Richard Brooks Bankers: H S B C 53 High Street, Grays, Essex RM17 6NH Independent Examiners: James Anderson & Co, Chartered Accountants Pentland Estate, Loanhead, Midlothian EH20 9QH Registered Address: 98 Yarningdale Road, Kings Heath, Birmingham, B14 6NB Charity Registration No: 1061881 Governing Document: Constitution NIEMANN-PICK DISEASE GROUP (UK) 2. Report of the Trustees For the Year ended 30 April 2005 The Trustees present their report and financial statements for the year ended 30 April 2005. Objects of the Charity To relieve sickness amongst families afflicted by Niemann-Pick Disease and any distress which may arise therefrom. To advance the education of such families, interested parties and the general public in all matters concerning the disease as the committee may determine. Review of Activities What the charity does and what has been achieved in the year is laid out in the charitys annual report of which these accounts form part. Legal and Administrative Details The information relating to Niemann-Pick Disease Group (UK) is contained on page 1. Trustees The Trustees who served during the year are shown on page 1. By Order of the Board of Trustees Trustee 23 July 2005 INDEPENDENT EXAMINERS REPORT TO THE TRUSTEES 3. OF NIEMANN-PICK DISEASE GROUP (UK) We report on the accounts of the Charity for the year ended 30 April 2005 which are set out on pages 4 to 10. Respective responsibilities of trustees and examiner As the charitys trustees you are responsible for the preparation of the accounts; you consider that the audit requirement of section 43(2) of the Charities Act 1993 (the Act) does not apply. It is our responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43 (7)(b) of the Act, whether particular matters have come to our attention. Basis of independent examiners report Our examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently we do not express an audit opinion on the view given by the accounts. Independent examiners statement In connection with our examination, no matter has come to our attention: which gives us reasonable cause to believe that in any material respect the requirements to keep accounting records in accordance with section 41 of the Act; and to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act have not been met; or to which, in our opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached. James Anderson & Co Chartered Accountants Pentland Estate LOANHEAD Midlothian EH20 9QH 23 July 2005 NIEMANN-PICK DISEASE GROUP (UK) 4. Statement of Financial Activities For the Year ended 30 April 2005 Unrestricted Restricted Endowment Total Total Note Fund Funds Fund 2004 2003 Incoming Resources Donations 3 51,805 43,842 - 95,647 60,405 Activities in furtherance of the charity's objects - Subscriptions 780 - - 780 720 - Fundraising & events 14,856 - - 14,856 32,053 - Other income 2,947 - - 2,947 3,478 Investment income 4 14,216 - - 14,216 12,220 Income from Charitable trading 847 - - 847 1,382 Total Incoming Resources 85,451 43,842 - 129,293 110,258 Resources Expended Cost of activities in furtherance of the charity's objects 5 67,938 36,232 - 104,170 67,075 Support costs of activities in furtherance of the charity's objects 6 14,826 366 - 15,192 14,463 Management & administrative costs 7 2,672 5,737 - 8,409 3,499 Total Resources Expended 85,436 42,335 - 127,771 85,037 Net Incoming Resources before Transfers 15 1,507 - 1,522 25,221 Losses on revaluation of Investment assets - - ( 312) ( 312) ( 8,141) Gross transfer between funds ( 20,000) - 20,000 - - Net movement In funds ( 19,985) 1,507 19,688 1,210 17,080 Fund balances brought forward 110,990 8,375 167,423 286,788 269,708 Fund balances carried forward 11 91,005 9,882 187,111 287,998 286,788 NIEMANN-PICK DISEASE GROUP (UK) 5. Balance Sheet As at 30 April 2005 Notes 2005 2004 Fixed Assets Tangible assets 8 - 602 Investments endowment fund 9 187,111 167,423 187,111 168,025 Current Assets Bank 104,714 121,554 Creditors Amounts falling due within one year 10 3,827 2,791 Net Assets 287,998 286,788 Funds Endowment fund 187,111 167,423 Unrestricted fund 91,005 110,990 Restricted funds 9,882 8,375 11 287,998 286,788 The financial statements on pages 4 to 10 were approved and signed on behalf of the board of trustees on 23 July 2005. J Green Trustee NIEMANN-PICK DISEASE GROUP (UK) 6. Notes to the Financial Statements For the Year ended 30 April 2005 Accounting Policies Basis of Accounting The charity prepares its accounts on the historical cost basis and in accordance with the Statement of Recommended Practice for charity accounts. Depreciation Depreciation is charged at annual rates on a straight line basis over the expected useful life of the assets. Equipment 3 5 years Incoming Resources Income accounted for as received by the charity. Investments Investments are stated at their market value. Resources Expended All expenditure is included on an accruals basis and has been directly attributed to one of the financial categories of resources expended in the Statement of Financial Activities. Trustees No remuneration was paid to Trustees during the financial year. Trustees are reimbursed travel and administration expenses and this amounted to 1,872 for the year of which 682 was redonated. Donations and Gifts 2005 2004 Donations and grants 95,647 59,269 Donations in kind 1,136 95,647 60,405 Investment Income Income from Charity Fixed interest fund 9,940 9,037 Interest receivable on bank deposits 4,276 3,183 14,216 12,220 NIEMANN-PICK DISEASE GROUP (UK) 7. Note to the Financial Statements For the Year ended 30 April 2005 (Continued) 2005 2005 2004 Cost of activities in furtherance of the Charity's Objects Unrestricted Restricted Family support 252 - 1,056 Clinic days - - 326 Helpline - - 426 Research 26,856 - 656 Conference costs 8,450 - 8,969 Support nurse costs 28,715 10,976 29,829 Development manager salary - 20,180 14,445 Development manager costs - 5,076 2,343 Development manager setting up - - 4,290 Cambridge research costs - - 989 Newsletters & leaflets 3,665 - 3,246 Christmas cards - - 500 67,938 36,232 67,075 Support costs of activities in furtherance of the Charity's Objects Unrestricted Restricted Executive & management meetings 2,047 - 2,632 Fundraising costs 9,117 - 3,015 Postage & stationery 2,344 - 1,346 Insurance & subscriptions 1,318 - 1,473 Depreciation - 366 5,997 14,826 366 14,463 Management & administrative costs Unrestricted Restricted Administrative assistant - 4,232 2,784 Payroll service - 470 - Admin set up - 800 - Website development 2,000 - - Upkeep equipment - - - Bank charges 177 - - Independent examiner's fee 495 - 480 Depreciation - 235 235 2,672 5,737 3,499 NIEMANN-PICK DISEASE GROUP (UK) 8. Note to the Financial Statements For the Year ended 30 April 2005 (Continued) Tangible Fixed Assets Equipment Used directly for charitable purposes: Cost At 30 April 2004 & 2005 24,979 Depreciation At 30 April 2004 24,377 Charge for the year 602 At 30 April 2005 24,979 Net Book Value At 30 April 2005 - At 30 April 2004 602 Investments Endowment Fund 2005 2004 Balance brought forward 167,423 165,564 Invested in year 20,000 10,000 197,423 175,564 Reduction in value of investment ( 312) ( 8,141) Market value at 30 April 2005 187,111 167,423 Historical cost of investments held at 30 April 2005 200,000 180,000 The investment is 176,520 units in Schroders Charity Fixed Interest Fund and is held in the U.K. Creditors Amounts falling due within one year Accruals 3,827 2,791 NIEMANN-PICK DISEASE GROUP (UK) 9. Notes to the Financial Statements For the Year ended 30 April 2005 (Continued) Movement in Funds Transfers/ At Change on At 1 May Incoming Outgoing revaluation of 30 April 2004 Resources Resources investments 2005 Endowment Fund 167,423 - - 19,688 187,111 Unrestricted Fund 110,990 85,451 ( 85,436) ( 20,000) 91,005 Restricted Funds Manchester Support Nurse - 11,342 ( 11,342) - - Cambridge Research 1,461 - - - 1,461 Administration 4,992 7,500 ( 5,267) - 7,225 Department of Health 1,922 25,000 ( 25,726) - 1,196 Total Restricted Funds 8,375 43,842 ( 42,335) - 9,882 Total Funds 286,788 129,293 ( 127,771) ( 312) 287,998 Purpose of Endowment Fund The income from the fund is expendable and is to be used when required to assist in financing the Manchester family advocacy and clinical support nurse service. Purpose of Restricted Funds Manchester Support Nurse Funding has been provided in part by BBC Children in Need, to provide a Niemann-Pick Clinical Support Nurse at the Willink Clinic, Royal Manchester Childrens Hospital. Cambridge Research Funding The Community Fund has funded a three year research project at the University of Cambridge, which concluded in June 2003. Administration Funding Funding has been provided by the Alzheimers Society by nature of a partnership grant towards the cost of an administration assistant. Department of Health Funding This is funding towards the salary and other costs incurred by the development manager. NIEMANN-PICK DISEASE GROUP (UK) 10. Notes to the Financial Statements For the Year ended 30 April 2005 (Continued) Analysis of net assets between funds Unrestricted Restricted Endowment Total Funds Funds Funds Funds Investments - - 187,111 187,111 Current assets 91,498 13,216 - 104,714 Current liabilities ( 493) ( 3,334) - ( 3,827) Net assets at 30 April 2005 91,005 9,882 187,111 287,998 NIEMANN-PICK DISEASE GROUP (UK) Income & Expenditure Account For the Year ended 30 April 2005 2005 2004 Income Donations received 44,186 20,110 Donations in kind - 1,136 Niemann Pick awareness 10,042 - Fundraising income 14,856 32,053 BBC Children in Need 8,919 8,659 Department of Health 25,000 23,000 Alzheimers society 7,500 7,500 Membership 780 720 Conference income 2,947 3,478 Bank interest 4,276 3,183 Fixed interest fund distribution 9,940 9,037 Christmas card sales 847 1,382 129,293 110,258 Expenditure Family support - 1,056 Clinic days - 326 Helpline 252 426 Research 26,856 656 Conference costs 8,450 8,969 Support nurse 39,691 29,829 Cambridge research costs - 989 Development manager salary 20,180 14,445 Development manager costs 5,076 2,343 Development manager setting up - 4,290 Web site development 2,000 - Newsletters & leaflets 3,665 3,246 Christmas cards - 500 Fundraising costs 9,117 3,015 Executive & management meetings 2,047 2,632 Postage & stationery 2,344 1,346 Insurance & subscription 1,319 1,474 Payroll service 470 - Administrative assistant 4,232 2,784 Upkeep computer 800 - Bank charges 177 - Independent examiners fee 494 480 Depreciation 601 6,232 Total Expenditure 127,771 85,038 Surplus for the Year 1,522 25,221 This page does not form part of the financial statements 3?K(2Ky,-? 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