Topics in this section:
- Awareness Week
- Organise an Event
- Fundraising Ideas
- Where Does Your Money Go
- Recent Events
- Volunteer
- Trust & Foundations
- Corporate Support
The NPDG (UK) relies solely on membership fees, voluntary donations, fundraising events and charitable grants for its income. We are very grateful to all those who support us and enable us to continue our efforts to make a difference to the lives of those affected by Niemann-Pick diseases. There are many different ways that you can get involved with the work of the NPDG (UK). People help us for lots of reasons, the one thing they have in common is that they find it to be a rewarding and challenging experience. If you decide to become involved in fund-raising, please let us know as we may be able to offer advice and guidance. When the activity is completed, tell us all about it, as we like to include fundraising activities in our newsletter ‘Niemann Pick News’ and also here on our website. You can do this by post, telephone or e-mail to the Central Office. The staff at our Central Office have a number of resources that you can help you to raise awareness or to fundraise, these include:
Letter headed paper, information leaflets, newsletters
Cardboard collection boxes
Stickers
Christmas Cards
Posters
NPDG (UK) Logo (use of our logo is restricted due to copyright, so please do contact us about this)
Fact Sheets on Niemann-Pick A, B and C
Guides to working with the media
Ideas for fundraising events
Balloons
T-shirts
Cotton Shopping Bags
Teddy Bears
You can download the following fact sheets by clicking on them, or alternatively we would be happy to send them to you by post:
About the Niemann-Pick Diseases:
About the Niemann-Pick Disease Group (UK)
History of the Niemann-Pick Disease Group (UK)
Awareness and Fundraising:
Guide to Successful Fundraising
Helping Families to deal with the Media:
All of the above mentioned resources are available from the office (most are free of charge): Telephone 0191 415 0693 or e-mail: niemann-pick@zetnet.co.uk