Run the London Marathon 2011 for the NPDG (UK) The NPDG (UK) has secured one place in the 2011 London Marathon. The ballot for places has now closed and will be notifiying the "lucky" runner week commencing Monday 21st June. |
The Big Lottery Reach Communities Programme - Success! The Niemann-Pick Disease Group (UK) is delighted to announce that our work is to be supported by a grant from the Big Lottery Fund Reaching Communities Programme over the next three years. We would like to thank the Big Lottery Fund for choosing to support our organisation with the grant, for the amount of £172,601, which has given us the fantastic opportunity to enhance our current support service with a new project, entitled the ‘Family Care and Interactive Support Service’.
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Would you like to share your ideas and experiences with other parents?
Following several requests from our Niemann-Pick families, we have decided to include a page on our website especially for parents to pass on useful tips and ideas that may help other families living with Niemann-Pick Disease. So if you have any favourite recipes, particularly ones that liquidise well, or other useful tips and ideas please email Sue Lowe at the NPDG (UK) Central Office.
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Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. EDCM is a consortium campaign run by four of the leading organisations working with disabled children and their families: Contact a Family, the Council for Disabled Children, Mencap and the Special Educational Consortium. Between them, the campaign partners represent over 770,000 disabled children and young people in the UK.
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First International Meeting of Non-Profit Niemann-Pick Disease Organisations
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Would you like to support the work of the NPDG (UK)? Raising funds for the NPDG (UK) has never been so easy! You can now create your own personalised fundraising page at www.justgiving.com , shop on line and raise funds at the same time with www.easyfundraising.org.uk or even raise funds when you surf the internet using www.easysearch.org.uk |
Welcome to The Niemann-Pick Disease Group (UK)
Making a positive difference to the lives of those affected by Niemann-Pick Diseases
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Niemann-Pick Disease Group (UK) 17th Annual Family Conference 10-12th September 2010 |
Interactive Workshop on Niemann-Pick Diseases for Professionals 10th September 2010
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