ࡱ> VXU'` bjbj 8       4 4ZYYYYYYY$Zh,]Y Y  Y "  Y Y    `g`6,^ YY0Z ] ] ~] - `O YY Z44484448444       Peter G. Penchev Ph.D. honoured by the National Niemann-Pick Disease Foundation (NNPDF) "Our Light in the Darkness" Barb Vorpahl, Chair of the NNPDF, gave a special presentation to Peter G. Pentchev Ph.D., in honour of his work with the Niemann-Pick diseases, at their Annual Family Support and Medical Conference, held in Seattle USA, in July of this year. Following is an extract from Barbs presentation: My first contact with Peter goes back 20 years. Our daughter, Stacey, had just been diagnosed with NPD type C at age 2. There was very little information anywhere. In a desperate call to find anyone who had even heard of the disease I was put in touch with NIH. Peter took my call. I will never forget that contact. Peter was that spark of hope -- a little light in our dark tunnel. At that time, Peter was Senior Research Scientist at the National Institute of Neurological Disorders at NIH, one of the few labs in the country working on NPC. We got to know Peter very well as Stacey went through the clinical trial on cholesterol-lowering medications and diet the first clinical trial for this disease. When the trial wasnt as successful as we had hoped, Peter encouraged the families taking part to take an active stance against this disease -- to become organized and start a foundation. So you might say he is the father of the NNPDF. He has guided us through the years, shared in our hopes and joys, and grieved deeply with our family and every family when yet another life was lost to this disease. Peter was the force behind finding the gene for NPC in 1997unlocking the key and pushing the door wide open in our understanding of this disease .leading us to where we are today with promising therapies. Although retired after 30 years at NIH, Peter continues to be an integral part of the research. He has served on our Scientific Advisory Board for 17 years and continues to offer his guidance and expertise. In special recognition and to let Peter know how his lifes work has inspired so many we have named our fellowship grants after Peter the Peter G. Pentchev Research Fellowships To read the full presentation visit:  HYPERLINK "http://www.nnpdf.org/PeterGPentchevTribute.html" http://www.nnpdf.org/PeterGPentchevTribute.html  #$OXtuv   0 P Y h    ͼt_)htwhxIKB*CJOJQJ^JaJph)htwhtwB*CJOJQJ^JaJph htwhtwCJOJQJ^JaJ htwhxIKCJOJQJ^JaJ htwh=nCJOJQJ^JaJ htwhCJOJQJ^JaJhh=nOJQJ^Jh5OJQJ^Jh=n5OJQJ^Jhh5OJQJ^J%XYuv h i PQgd h i /OPxy޸ޠ$htwhxIK0JCJOJQJ^JaJ/jhtwhxIKCJOJQJU^JaJ)jhtwhxIKCJOJQJU^JaJ htwhtwCJOJQJ^JaJ htwhxIKCJOJQJ^JaJ htwhCJOJQJ^JaJ6&P 1h:pxIK. 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