Research
The NPDG (UK) Says “Goodbye to Clinical Research Nurse Liz Jacklin” The NPDG (UK) would like to thank Liz for her hard work and efforts over the last four years and to wish her every success in her new role. The NPDG (UK) are now in the process of reviewing the post of Clinical Research Nurse as part of an overall review our research strategy. The outcomes of this review will published in due course.
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The guide, published by Sense about Science, in conjunction with the Multiple Sclerosis Society, Motor Neurone Disease Association, Alzheimer’s Society and Parkinson’s Disease Society, explains how to tell the beneficial from the bogus in the face of the miracle cure stories, new wonder-drugs and breakthrough therapies that are increasingly promoted. The Sense about Science patients guide can be found by clicking here. They also have a Peer Review Guide. |
Peter G. Penchev Ph.D. honoured by the National Niemann-Pick Disease Foundation (NNPDF)
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New European Task Force on Brain and Neurodegenerative Lysosomal Storage Disorders (LSDs) The mission of Brains 4 Brain is to catalyse research in the field of neurodegeneration and lysosomal diseases. Brains for Brain is formed as an association of highly distinguished scientists and clinicians working together to create and coordinate effort towards the comprehension of the pathophysiology processes of neurological disorders occurring in lysosomal storage disorders.
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On November 17th Liz Jacklin, the NPDG (UK) Clinical Research Nurse left her post. Liz has
prepared the following statement……..” after 4 and a half years working for the NiemannPick Dis
ease group (UK) I am now writing to inform you that I have been offered and have accepted a job
as Clinical Research Nurse with the Medicines for Children's Research Network (MCRN) based
at the Royal Manchester Children's Hospital. I have very much enjoyed the opportunities and experience
I have gained whilst working for the NPDG (UK).
I will of course very much miss the patients and the families that I have got to know and wish you all the very best for the future,
you will all remain in my thoughts and in my prayers; I very much hope that I will see many of you
again soon. Liz”
Barb Vorpahl, Chair of the NNPDF, gave a special presentation to Peter G. Pentchev Ph.D., in honour of his work with the Niemann-Pick diseases, at their Annual Family Support and Medical Conference, held in Seattle USA, in July of this year.