Research
Liz Jacklin Clinical Research Nurse |
The guide, published by Sense about Science, in conjunction with the Multiple Sclerosis Society, Motor Neurone Disease Association, Alzheimer’s Society and Parkinson’s Disease Society, explains how to tell the beneficial from the bogus in the face of the miracle cure stories, new wonder-drugs and breakthrough therapies that are increasingly promoted. The Sense about Science patients guide can be found by clicking here. They also have a Peer Review Guide. |
Peter G. Penchev Ph.D. honoured by the National Niemann-Pick Disease Foundation (NNPDF)
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New European Task Force on Brain and Neurodegenerative Lysosomal Storage Disorders (LSDs) The mission of Brains 4 Brain is to catalyse research in the field of neurodegeneration and lysosomal diseases. Brains for Brain is formed as an association of highly distinguished scientists and clinicians working together to create and coordinate effort towards the comprehension of the pathophysiology processes of neurological disorders occurring in lysosomal storage disorders.
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My name is Liz Jacklin; I am the Clinical Research Nurse for the Niemann-Pick Disease Group (UK). I am based in the Willink Biochemical Genetics Unit at the Royal Manchester Children’s Hospital, along with Jackie Imrie, Clinical Nurse Specialist for Niemann-Pick Disease and, Dr. Ed Wraith Consultant Paediatrician.
Barb Vorpahl, Chair of the NNPDF, gave a special presentation to Peter G. Pentchev Ph.D., in honour of his work with the Niemann-Pick diseases, at their Annual Family Support and Medical Conference, held in Seattle USA, in July of this year.